Wednesday, August 17, 2016

Update on Caden's Heart

I am thankful I remembered the persistent chill in the cardiac ward at CHOA from our stay five years ago, wrapping my sweater around me and attempting to stop my shivering. They prep Caden for his catheter, giving him medicine that makes him loopy: they should call this dizzy medicine, he declares through giggles. We all laugh together. I take videos, and he cries when they wheel him back, not for us but for his Kindle. Before the procedure they take pictures of his heart, and explain in detail the ways they will attempt to buy space in his valve if there is any narrowing. If, however, the valve itself is just too small (they put it in at five days old, after-all), they will only take measurements to gauge how soon he needs surgery. We nod and sign our agreement, trying not to dwell on the side-effects they dutifully describe in detail: possible arrhythmia and need to shock the heart, the stent “slipping” out of place, rejection of foreign material, etc.

They tell us it will take two hours, and we slip downstairs for coffee and breakfast, though my stomach turns and flips at the thought of food. We sit back in matching maroon arm-chairs, I read my book and Adam scans the news and flips channels to the olympics. We talk about how different it feels this time. Five years ago, we were reeling from the news that our son had a broken heart. Every decision felt fast and furious and we stumbled through it all like zombies. This time we had space to pray together, and think carefully about how to prepare Caden and Jayci, how to proceed with the best and most well-laid plans as parents and followers of Jesus.

Sooner than we expect, the nurse peeks her head in and says they are almost done. I guess this means no stent? we ask. She agrees, and we steel ourselves to talk surgery dates.

One thing you don’t necessarily want to hear from the doctor looking at your son’s heart is that they found something unexpected. To begin a conversation with the reassurance that Caden’s persistent shortness of breath is not anxiety but a heart that simply can’t keep up. The doctors tag team an explanation that the pulmonary valve is small, as expected, and will need to be replaced. But also that pressures in his right ventricle are entirely too high, even at rest, because of the combination of both this small pulmonary valve, and significant narrowing of a pulmonary artery (bc of scar tissue from his first surgery). His heart is working so so hard, all the time. They tell us, solemnly that he has always had Shone’s Complex (we have never heard of this, but apparently it just means an underdeveloped left side of the heart), that his mitral valve leaks, and that even his neo-aortic valve (the pulmonary valve they put in his aorta during his Ross-Konno procedure) won’t last forever.

Suddenly we find ourselves reeling again, and they say they will present his case this Monday and set a surgery date. A surgery that won't just be a valve replacement, but will also include a repair of the area narrowed by scar tissue. It’s not an emergency, they assure. But it will be soon.

We nod, Adam asks questions (while I focus on not-crying), and we scurry back to the room when they tell us Caden is waking up. We spend the next forty-five minutes holding Caden down while his entry-site bleeds and his pupils dilate in fear. It is just like his night-terrors, and nothing we can do or say will calm him down. Adam and I lock eyes, and we pray and I cry in helpless frustration. When he finally slips back into sleep, under the watchful eyes of the Berenstain Bears on Sprout, and the frantic beeping machines and flashing lights of the fire drill finally quiet, we sit back in the maroon chairs and exhale.

How will we ever make it through surgery? we ask our nurse. They will keep him sedated, she says.

Will his chest stay open? we ask. I don’t know, she answers: maybe.

I mean, she continues, he will be intubated and heavily sedated, because you don’t want someone you love to remember. To remember any of it, I agree, to dwell on all that pain, to know he breathes through tubes and has a chest splayed wide.

Adam and I remember though, and we will hold his story again. It is harder this time, we agree. Because we don’t just have to be tiny baby Caden’s guardians, but we have to actually parent him and Jayci through their all fears and anxieties right alongside our own. We have to prepare, and explain, and trouble-shoot, and figure out how to not collapse under our own emotional and physical exhaustion all-the-while.

For now, that is all we know: that Caden must stay mostly quiet and still for three days. After that, we still have lots of questions. What limitations will he face before surgery? What timeline are we on for his next open heart surgery (which right now I can scarcely imagine after how hard today was when it was a non-invasive outpatient procedure)? What do they mean that his aortic valve won't last forever? Those are all unknowns, and our hearts squeeze with fear even while Caden’s beats wild and pumps harder than it should.

We remind ourselves that He is held by the very One who made him. That his beautiful amazing heart is never a mistake, and that timing tumbles out exactly as it should. That doesn’t mean we understand, or that we have all the answers to any of our own questions. Instead, we wait in faith and ask for prayer. We promise to do our best to keep you all updated. We ask for prayers in advance, and thank you again for the ways you lift our arms when we are weary. We are grateful.
2 Caveats to this post:
1- I am worried that this sounds over-dramatic, like the heart-experts will feel like we are blowing this all out of proportion. But this is just how it all feels to us as we reel from unexpected news, before we have really talked to our amazing pediatric cardiologist and had things explained in careful ways after a little emotional space. 
2- We don't know what we need right now. Adam and I just prayed over my words, and over our hearts, because we both agree we feel like we need something, we just aren't sure what that is. More community, more space, more faith, more details, less phone calls, more phone calls, rest. We just aren't sure what is best for our hearts, our family, for Caden, for all of us. So mostly right now just pray for clarity for us? To figure out what we need and how to walk towards it. 

Tuesday, August 16, 2016

From the Precipice

I have a friend, internet-turned-real-life, who wrote one time about the ministry of funfetti. It was (and is) one of my favorite things I’ve ever read via the internet, and I knew I would love Danielle from the minute I read it (stalker-alert). Because my life is a little (understatement) out-of-the-ordinary, it’s a rare gift for me to encounter someone that makes me feel less alone. Danielle is one of those gifts. She also makes me wish I paid closer attention to my writing teachers, because girlfriend can write, but that’s besides the point. Anyways, all that to say when I wanted to write something to celebrate the release of her amazing book, Assimilate or Go Home, I had many ideas of unrecognized ministries in my life that I wanted to write about. The ministry of the always-open-door; the ministry of the messy-minivan-as-taxi-service; the ministry of extra spaghetti and always-stocked ramen noodles; the ministry of sour patch kids; the ministry of lowering our expectations.

But when I take a minute to stop and think about where I am today, and where I will be tomorrow (the ministry of taking a minute), I know I actually need to talk about the precipice where I find myself dangling.
I had reached a breaking point, where I no longer believed I could save anybody and I didn’t know if God could either.

Danielle’s words give voice to the things I fear, I train my eyes over them like fingering a rosary, clutching hope that I will survive finding myself at the very end of my abilities.

Five years ago, when Caden had open heart surgery I sat in the same chairs we will sit in tomorrow, and I felt (mostly) peace at surrendering my son to a God I knew to be good. But after five years lived in the thick of a world more broken than I could have imagined, “good” seems a more fluid and inscrutable concept.

The problem is not that I no longer believe in God’s goodness, but that I’m not quite as sure what good actually means. My definitions of love and success and goodness have been flipped upside down as I live on the margins and walk alongside the broken.

The love has quieted me, confused me, and dragged me into places I never could have foreseen. It cannot be tamed, and that is turning out to be very inconvenient indeed.
There is a chapter near the middle of Assimilate or Go Home and I read it and re-read it, tightness blooming in my chest. Danielle says she's starting to believe that his eye is on the sparrow, in the beach strewn with dead birds and a landscape rife with loss and pain. She asserts that choosing life and messy relationships despite pain is a way to give a finger to the darkness, and I feel a kernel of hope inside that perhaps this is true.

All of us are slowly making our way to God, our hearts already broken by the time we arrive, searching for the only one who truly sees it all, the one who will never look away, the one who counts each and every fallen sparrow.

I imagine tomorrow morning, when we will hand our son over to skilled doctors and then sit and wait, anxious and skittish, for them to bring us back to him. I wonder how they can balloon his heart valve with the marvels of modern medical technology, wonder how too I might balloon my own heart, gently and firmly expanding its capacity for love and sorrow and joy all at once.

I am like the Israelites, gathering manna, just enough for today. Reminded afresh that I cannot save myself or my son, let alone the world. Instead I gather and nourish, quietly and not more than I need.

And so, rather than save the world, we carve a small space in it where the Kinngdom might come with kinship and grace and peace instead of fear. We inhabit this space, and then invite our neighbors in, even as we realize that they also invite us into their own spaces where the Lord is already present. Because when I stop trying to save the world, I remember that we do not bring Jesus to the margins but meet him there. We have no answers, but we do have compassion and lament and suffering with.

The world is so much worse than we would like to believe, and God is so much wilder than we are being taught. We can study the kingdom of God, but we can never contain or subdue it. Reading about it will never equal the experience of it. That we must discover for ourselves, and we will find it where God always said it would be: on the margins, in the upside-down kingdom.
*You guys, I don't gush about books lightly, but I seriously could have highlighted every passage in this gorgeous and somehow-still-completely-relatable book. Danielle says important beautiful things that point us to Jesus and his Kingdom and I want you all to go get it immediately. Seriously.

Monday, August 8, 2016

Five Years Ago Today

Five years ago today we woke early, shaky. Matt Hammitt plays quiet as we pray together and circle the parking deck, easily finding an early morning space. My sister brings me a plastic donut pillow to sit on, because I birthed Caden only five days ago and nine hours in a plastic chair don’t feel exactly comfortable at this point post-delivery. Every three hours, I wheel my electric breast pump to a small room and hope for no news while I’m gone, crying as my uterus contracts gently and I bottle each tiny drop of my milk to give the doctors. Emptying myself, honestly uncertain if he will ever even get to taste my meager offerings.

Each time the phone rings for us, my heart drops somewhere deep in my stomach. I watch Adam scramble up to answer, and don’t exhale until he relays the message: they got him on bypass. his chest is open. things are going as expected. Nothing rings exactly hopeful, but nothing seems catastrophic either, and so we rest and pray and distract ourselves and cry a little in waves that crash over the longest day of our lives.

Somehow we made it though that day, and all 1825 days we have been given with our Caden since then. We laugh when he tantrums, or alternately cry in frustration when he refuses to listen, or when we explain to his babysitter that he will always always say he’s starving when he’s actually desperately tired. We watch him sweat and cry and laugh and hug and play basketball, and every single minute I fall more in love with who God has created my sweet boy to be.
A few weeks ago, Caden and Jayci throw a football back and forth in my parent's lawn while Isaiah and I sweat and watch from a blanket in the ridiculously-plush grass. Caden stops suddenly, his hand over his chest: my heart hurts mommy, he tells me: it’s beating too too fast. Internally I panic, although outwardly I just quietly bring him inside to air-conditioning and make him sip water while laying on the sofa. Typically, we don’t talk about Caden’s heart, don’t ask him how it feels, don’t worry about it much during the course of our day-to-day lives. This is why, of course, his words drive me to panic: I know they are how he feels, and not a seed of worry we have planted by asking him constantly how his heart is feeling.

That night, I agree to sleep in Caden’s bed, ducking my head to climb in next to him on his bottom bunk. We aren’t the family-bed type (apparently), and I’ve actually never done this before. I lay on my side, facing him, with my knees curled up. His position mirrors mine, and he curls himself neatly into the space where my womb carried him five years ago. I kiss the scar on his forehead while he chatters about how he will probably roll over on top of me, but will try not to, but can’t really control when he sleeps, but it's ok because I can just move him right back. I finally shush him gently and say bedtime prayers, his heart beating its unique rhythm against me. Before long, his breath settles into a slow even rhythm and I try not to wake him back up with my tossing and turning. Worry beats wild in my own chest, relentlessly chasing away sleep. Finally, I climb awkwardly over his protective side-rail, stepping on legos and cursing mildly under my breath before slipping between the still-cool sheets next to Adam.

Now, I ask Caden all the time about his heart. He waves me off, normally, insisting he is fine. Though lately more and more frequently we notice him struggling to catch his breath. We issue instructions to friends with trampolines not to let him bounce, we bring him water bottles and force sips, and schedule a meeting with the cardiologist. After appointments and listening and more than a little chest-tightening worry, we have scheduled him for a heart catheter in just over a week. He just turned five years old, and he will have his first heart-related procedure a few days after the fifth anniversary of his open heart surgery. They will mostly take a better look, find out what really beats and flows beneath the surface of his still-tiny chest. Depending on how things look once they are inside (via catheter, not open-heart), they will either try and balloon the pulmonary valve to buy time before his next surgery, or they will tell us that he needs surgery sooner-rather-than-later.

Five years of normal life have made it quite easy to forget. And this upcoming catheter procedure is non-invasive, out-patient even. But even still, it reminds us that for Caden, heart surgery looms as not possibility but eventuality. And so I sleep in his bed, and occasionally he slips into ours, or pads in quietly after midnight to startle me awake and ask me to come check on him in five more minutes. He smothers his brother with too-much love, builds all the lego sets, begs to play basketball, and we decide to wait another year for him to start kindergarten.

These days, I find myself living in one of two places: fear or avoidance. And yet when Caden was in the hospital for his first surgery, we learned to inhabit the elusive space of awareness with more peace than fear. Where we knew and accepted the risks, facing head on all the things we might lose, and choosing to trust anyways. This faith forged by hardship leans different than a stubborn refusal to accept that bad things might happen. Not burying our head-in-the-sand, but choosing life not unafraid but afraid and moving forward anyways. This is how I want to live, of course, but I forget and I listen to the whispers and lies of an enemy who quietly whispers “did God really say?” And so things get dark and I feel afraid, and I forget the Lord’s goodness to remain by our side during the darkest and scariest hours of our lives.

My fierce love and hopes for my boy grow stronger and deeper with each passing day and year. Five years ago, handing my son over the surgeons was the hardest thing I’ve ever done, and I am afraid that next time will only be harder. Because that day Caden was a tiny stranger who I loved completely and fully, but who couldnt question us or cry for us or explain how much it all hurt. And next week, when he goes to the cath lab (and next time he has open heart surgery), he is not only my beloved son, but someone who I know and love intimately and fully in ways that swell and grow and change every single day.
And so I’ll just go ahead and admit that I’m scared. Terrified really. Of a mostly non-invasive, nearly routine outpatient surgery. But it's a reminder of the truth I mostly try to forget: Scripture promises us a lot of things, but tomorrow is not one of them. If I fool myself into believing I can secure a thousand more tomorrows for my kids, then I will chase that security as the end goal. But when I remember that I cannot pick back up the things I’ve laid at Jesus’s feet, I recognize Caden’s life as a gift that doesn’t actually belong to me. We are better for having him in our lives, in our family, in our neighborhood. The kids love him, the boys come to his basketball games and birthday parties, and he widens our ideas of ourselves and of faith every single day. And so even knowing he is safe in our Father’s loving arms, I nevertheless find it harder to relinquish him there the older we both get. The golden calf of safety calls strong and loud, and I occasionally lose sight of the beautiful life that can only be lived in surrender.

Yesterday, we went to Target (as usual), and we parked “under our bottoms” (which is what Caden still calls the underground parking deck). I told the kids we should take the stairs, and Caden looked at me earnestly and said he couldnt because it made him feel too tired. I agree and smash the elevator button quickly, uncertain if he knows enough to use his heart-problems to his advantage, or if his newfound shortness of breath is simply a dire warning sign much like the gray clouds gathering above the cheery red bullseye above us. I wonder sometimes if these last five years in our neighborhood and family have deepened my faith or shaken it. If the questions and hurts have stretched and strengthened me, or finally brought me to a place of brokenness. I am not sure I know what to do with a God who said yes to Caden’s successful heart surgery last time, but won’t guarantee a positive outcome again. This feels scary to put in words, like perhaps I will be shaken by a sudden bolt of lightening or stricken with terrible plagues. How can I doubt the God who gave us back our son, nine hours after we handed him over, with a heart that was healed and whole yet beating wild beneath the plastic over his gaping wound? But I know I am gripping my Caden with tightened fists, doing my best to follow God even when I have more questions than answers. Doubting His goodness in a neighborhood where even yesterday a nine year old stole a car, and knocks never stop peppering from kids without school supplies or uniforms or hope.

But right in the middle of my darkest doubts and greatest fears is perhaps exactly where I will stumble back into my faith.  And perhaps there I will discover a faith never really lost, just expanded and widened, with more space for the questions and tears. Where fears don't mean I am not trusting enough, but where the surrender of things most precious to me yield a rich harvest of grace and joy. And so I loosen my grip on my middle boy; knowing that he will, indeed, change the world. With his special heart, his fierce love, and his bravery. With his wicked sense of humor, his inclusive joy, and his courage even when he's feeling extra shy. With all the thousands of quirks that make him special, and all the things we now know we will painfully and joyfully surrender to the God who made him and loves him with a fierce and unconditional love we cannot even fathom. The God who feels the exact same way about each neighborhood kiddos who knocks on our door and pushes Caden on the tire swing, and even the ones who steal cars and crash them at the corner store. We relinquish our grip on all of them, remembering the ways that open hands always allow us to receive far more than we give up.
We pray for healing, for freedom, for peace instead of fear. We pray for steady hands and skilled doctors, for wisdom for us in explaining it all to Caden and his big sister (who tends, like her mother, towards worry). We pray for the boys who steal cars and all the ones who have and who will steal our hearts and break them. We pray for favorable outcomes for Caden next week, and for thousands more tomorrows, accepting each and every one of them as a priceless gift. 

Standing on this mountaintop
Looking just how far we've come
Knowing that for every step
You were with us

Kneeling on this battle ground
Seeing just how much You've done
Knowing every victory
Is Your power in us

Scars and struggles on the way
But with joy our hearts can say
Yes, our hearts can say

Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful

Every step we are breathing in Your grace
Evermore we'll be breathing out Your praise
You are faithful, God, You are faithful
(Matt Redman)

Tuesday, July 12, 2016

Recommended reading after a hard week

*side note: pretty flowers throughout, because sometimes we just need a little beauty wherever we can find it. 
Jayci has always been a fairly anxious child. From an early age, we tried to help her memorize some verses to repeat to herself when she feels scared, particularly in bed. This was the first one we taught her:  There is no fear in love. But perfect love drives out fear, because fear has to do with punishment. The one who fears is not made perfect in love. – 1 John 4:18

Granted, the only part she remembered (still) is "perfect love drives out fear." These days, we have taken her memorization a step further to help curb her anxiety. Together, we sit quiet and take deep breaths. Breathe in perfect love, I whisper. Breathe out fear, she whispers back. Our bodies relax and we repeat it until we believe it.

Maybe we all need to practice breathing in perfect love and breathing out fear, because the world feels pretty scary right now.
That said, I have lots of swirly-messy thoughts about the past couple weeks in our nation, and in my own home. But for now, I'm taking the posture of a learner. And I hope you will too. Together, let's listen to the voices of those who are speaking from their own experience, the ones who don't look like me or think like me, necessarily. Remember, breathe out fear. Because listening to someone we don't agree with is not actually dangerous, and we can (should) allow our hearts and minds to be stretched and challenged.

If you only read one thing this week, make it this from my dear dear friend, co-laborer, and actual neighbor:
The Moment I Watched Alton Sterling Die

And if you only watch (or listen) to one thing this week, I suggest this message:
Racial Reconciliation with Damian Boyd

I also wanted to share some more good reads and/or watches for you this week especially. Because sometimes listening is more important than speaking. I also recognize, however, that there are at least one million different voices and "angles" jockeying for your attention. Which is why I wanted to share a few things I found from trusted friends and sources.

No Love No Freedom - Life Reconsidered
Ask Stupid White People Questions - from my new friend Lindsy at Light Breaks Forth
Chaos or Community - Austin Channing

If you're anything like most people (myself included), sometimes you just want to know what you can actually DO: Campaign Zero

And finally (perhaps most importantly, right?): 17 Poems to Read When the World is Too Much 

Want to read more? 70+ Race Resources for White People

Oh and if you want to be encouraged by people helping and loving, check my friend Lori's blog (What it Looks Like to be Loved) to see her brand new backyard, so she can love her neighborhood well. That said, we wouldn't turn down a ballin' (literally) basketball court like hers.

Monday, June 27, 2016

Camp and Hope

I am trying to enjoy some of the “rest” we were promised during our week at KAA (Kids Across America) by reading my YA novel in the warm sunshine, dangling my feet in the pool to keep from sweating too badly. Somewhat unsurprisingly based on the week thus far, I am almost immediately called from my poolside oasis to deal with one of our 49 kids causing some major discipline issues. I roll my eyes at another kaleo(KAA speak for ministry leaders) and joke, of course we have another one in trouble. I wonder if she hears the weariness hidden beneath my tone, deliberately light-hearted. I alternate between faux despair over our ridiculous number of children in trouble, and a plastered smile, like it doesn’t even bother me: oh sure, add another one to our fire-zone collection, I laugh with a shrug. Technically, the "fire zone" marks the last straw. The place kids end up when they can no longer be considered campers, and thus become the responsibility of their kaleos. They eat PB sandwiches (no jelly!) for every meal, drag their luggage around with them, and sleep on the open-air gym floor (along with their poor, unlucky kaleo). Unfortunately, one of our kiddos reaches said status before even making it 24 hours into camp. Throughout the week, a grand total of nine of our kiddos make it to the fire zone, but only two actually sleep in the gym and never work their way back into the good graces of camp.
Nearly twenty percent of the fifty kids we brought to camp are currently homeless as the result of eviction. One would think a week of guaranteed meals and a warm bed would be a welcome respite for them; instead, the chaos of their home life spills straight over into their time at camp, and almost all of them find themselves in trouble at some point throughout the week. I watch other ministry leaders take their kids to buy things at the camp store: $35 for a sweatshirt, $15 for a hat, $3 for a bracelet. I can’t help but think about the three kids we let come last minute, who each hurriedly pack a plastic walmart bag and hand it to me: ms becca, I brought all my clothes, the youngest reports proudly.

We tell ourselves our kids are the ones getting in trouble because they come from the roughest circumstances. Because spiritual warfare. Because of so much hurt. My sneaking suspicion, nevertheless, is that the problem may actually be us. Adam and I both lean hard towards grace, and somehow always neglect to teach them high standards of behavior. We don’t command respect, they certainly don’t fear us, and possibly don’t even like us. I feel embarrassed, the same way I do when my kids throw epic temper tantrums mid-Target run. I want our kiddos to be themselves, of course, but only an acceptably polished version. I’d like to feel accomplished and proud, like good parents and ministry leaders. I secretly wonder if the other leaders roll their eyes at our incompetence.

My complicated inner monologue (as written out here) is not a cry for help, or a fishing for compliments and reassurance. Truly, it’s not. Because if I learned anything while we accumulated kids in the fire zone, it’s this: the things they carry are heavy. And so we sit with the ones who get in trouble, and just listen.

One of our fourteen year olds confesses he has been sleeping on park benches. One tells us about going hungry for days at a time. One girl tells us about sitting in a car at age ten, and shielding her younger brother while they watched their mother get shot and killed. Another watches her older bother’s kids full-time, she is fourteen and they are three kids under the age of three. One tells us her dad is in jail for robbing a bank. Another was raped by a neighbor when she was twelve. One’s mom died when she was four, her dad followed earlier this year, and she lives with her disabled grandmother. One screams guttural and anguished for twenty minutes about ending his life: he doesn’t want to get on the bus to go home.
I sit quiet beside them, mostly because I have no good answers. I’m not sure what to say, how to take away the massive weights they bear in their small bodies. So instead I do the only thing I know to do: I take their hand and carry some of their weight for them. I give it to Jesus, of course, because I could never bear it alone. But even still, their burdens sit heavy on my shoulders and heart, and in the knots of tension all down my back. We breathe deep, and hold gently and with awe the heaviness of the stories they offer up like prayers. I hug them close, recognizing the holy ground we stand on in the heartbreak and pain. The thin places where heaven and the Kingdom draws ever-nearer. Together, we look up at the sky strewn with stars and try to remember that God is good and his promises are true. That He numbers those stars, and that He knows each of their names. We cannot, truly, fathom the depths of the gift we have been given by being entrusted with the lives and stories of these remarkable little ones, beloved by their Father.
On the last day of camp, I joke with all the counselors and leaders that they must be glad to see us go. After the evening awards ceremony, I am nearly ready to breathe a sigh of relief as we herd our children towards the bus. We walk through the woods and across the field under a black sky littered with stars, I feel my nerves stretch taut and my patience worn thin. I snap at a boy who calls me fat, asking if I’m pregnant, and think this might embarrassingly be the thing that breaks me clear through. As we walk up to the buses, I feel tension crackle in the air and notice huddled groups of leaders. Bewildered, I crowd my group of kids onto the bus, only to learn that our older boys got into a fist fight with another group just moments earlier. Of course they did, I sigh. One of the KAA leadership gets on the bus and informs us (sternly, to say the least), that we won’t be leaving until whoever stole another kids’ shoes coughs them up; in fact, he will call the Missouri police to search the entire bus if we don’t hand over the shoes in five minutes. Adam and I (along with our other two Kaleos) are so-far-past-finished, completely wrung out and desperate to be home. We beg and plead with the boys seated in the back of the bus to just give up the shoes for-the-love-of-everything. They insist with wide-eyed innocence that they didn’t take them; one of our boy’s elbows bleeds, and another asks if I can wrap his hand, which he thinks he broke punching several boys in the face. I toss the first aid kit at them and add their names to the list of those we won’t bring back. We search under every seat, in every overhead bin, and make all the kids stand up to check underneath them. Finally, we stand up for our boys and insist they don’t have the shoes, only to have one of them trot off the bus with a grin and hand them over. I am livid, past angry nearly to the point of tears. And we still have a thirteen hour bus ride ahead of us. I duck under my blanket, and pray they all just sleep.

I wake up hours later, surprised to find that we have, in fact, all slept. That the sun rises quietly over Memphis, the sky steeping in reverse: from dark ink to brilliant pink and orange, finally settling into blue. Some of the other kids at KAA this week were from Memphis, and I think about them as everyone else snores and snuggles under blankets, oblivious to the brilliant show-stopping sunrise outside their windows. They are home already, I think enviously. While we still have so far to go.
I wrote this post earlier this week, and couldn’t figure out how to end it. I asked Adam to read it for me, and then to tell me what to say for the ending. He reads it, and then tells me he doesn’t know; in fact, he says, it might be too soon for him to even revisit that week, it caused flashbacks.

So I sit beside the ocean and pray; hoping God will show me how to tie a nice big bow around it all. Hoping for reassurance that the things we sow and the work we do will, in fact, eventually reap a great harvest. But I only hear silence, besides the ocean roaring and our children giggling. The tide comes in and out, and Isaiah falls asleep in the shade under the umbrella. The sun beats relentless, and the sand burns my toes until I burrow them down deeper. I have no answers, which seems to be my constant refrain. Instead, I try to rest in the only thing I do hear: to end with hope. That the story is not finished, and He will one day take all that is wrong and make it right. Come Lord Jesus, come.

Those of you who get my email newsletter have also read a more specific story from camp and our family and what’s going on currently. I know this sounds quite cryptic, it’s just that the story was too tender and painful for me to feel comfortable sharing publicly. All that to say, if you didn’t receive our email newsletters and would like to, please shoot me an email (rebecca at and let me know, I’ll be happy to pass it along. Thank you all so much for your prayers and encouragement.

Thursday, May 26, 2016

Mothering in the Age of the Comment Section

In case you are new around here, a few months ago, we filmed a video interview for Gerber (the baby formula, not life insurance). Some friends had pitched our family story to Gerber, and after we were selected, they showed up with a full camera crew, which was very exciting and quite the curiosity to our neighbors. Holding my cute three month old Isaiah, I spoke for just a few minutes about our lives, about mothering, and about feeding formula to our son Caden, who is four now, but had open heart surgery when he was born.

Last week, Adam told me not to look at them. But of course, that only piqued my previously mild curiosity. So I hopped over to the Gerber facebook page to see our video, which now has over 1.2 million views. First, I notice all the mad faces, 56 of them (never mind that there are 1.9k likes). Then I scroll through the comments, aghast at the anger and vitriol aimed mostly at Gerber, but also at me and my family. Breast is best, they chant. Followed by cries of emotional manipulation and exploitation. And queries into why in the world I wouldnt have breast-fed Isaiah, since after-all he wasn’t the one who had open-heart surgery. Strangers defend me, and then get attacked, because they are obviously formula-feeders. Also, I clearly just wanted to get that check.

I scroll and scroll, occasionally liking the (rare) kind comment.

My fingers itch to defend myself. I want to explain how I painstakingly pumped every three hours for 4 months straight for Caden, so he could get breast milk through his feeding tube (and yes, also formula for extra calories). And how I breast-fed him for four more months, even though doctors thought I probably couldn’t. I want to explain how I DID, in fact, breastfeed Isaiah for almost eight months. I just also gave him formula sometimes. To announce that my check was actually quite small, that we didn’t even get a life-time supply of Gerber. To ask commenters to please re-watch the video because I carefully stated that the #formulaforhappiness is different for everyone. Because every baby, every momma, every family, is different. With different needs, capabilities, and limitations.

But even if I did defend myself, responding to every comment with thoughtful and gentle rebuttals, I’m not sure that would change anything or anyone. Because what I hear most clearly in the seemingly never-ending string of comments is a whole lot of pain. And isolation. And mommas who hope they are doing the right thing, but aren’t entirely sure and so turn to the Gerber facebook page (of all places) for confirmation and validation. Sometimes putting someone else down makes you feel better, or that’s what my mom always told me when I was getting bullied in school.
The funny thing about this whole Gerber-video-drama, is that I thought quite intently about what I should say when interviewed. The message impressed into my heart was the very same one I need right now, sitting here feeling slightly cyber-bullied and sad. A gentle reminder that every story leans different, and mothering is hard because it’s hard, and also because we never feel quite sure we are doing the right thing. That it ultimately comes down to loving our kids and helping them know they are loved (no matter how they’re fed), so they can love others out of that belovedness.

Honestly, I doubt my parenting at least once every single day. I am exasperated and respond the ways I wish I wouldn’t, or lay in bed at night bemoaning all the ways I failed to connect with my kids, who grow up faster than I would have thought possible. So the last thing I need, or any of us needs, is more people reminding me of how I’m doing it all wrong.

What I DO actually need is a village, friends and family and neighbors that support and help and carry one another through the hard and holy role of mothering. As more and more women find their village online, how can we support each other? How can we make the internet, and even the comment sections, a more gentle place where we celebrate and learn and grow together? Disagreeing on things, of course, but nevertheless loving and celebrating all the different ways we live our lives and care for our kids.

Or maybe Adam was right, and I should just stay far away from comment sections. Maybe instead, I should sit on the front porch, call my friends, or text my sister. I should stop defending my choices and start living them with the understanding that I am doing the very best I can as a perfectly imperfect mommy.

Monday, May 23, 2016

On the Other Side of the Camera

I'm a photographer. And a writer. I don't declare either of those things often enough to believe them, but I suppose they are true. Nevertheless, I tend not to get nearly enough pictures of myself with the kids. Or of our whole family. I have more than enough pictures of the cutest baby ever, along with his big brother and sister. There are hundreds, possibly thousands, of pictures of my kids in various states of candid and posed. But since I don't tend to let myself venture to the other side of the camera very often, I really treasure these sweet shots my amazingly talented friends Carrie and Megan took at my little sister's wedding last weekend.

Try not to freak out about how cute my kids are, or how talented my friends are. It's fine, but seriously.
Also, I am sharing these here mostly because I am currently completely at a loss for the best place to share and way to print/store/etc my family photos and such. I mean, I can only have so many pictures on the wall before I run out of space. And none of y'all want to see ALL the pictures I take, that would be absurd. But what, oh what, should I do?! Any suggestions are welcome. 


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