Tuesday, September 6, 2011

Nesting and Feeding in Various Forms

Our lives currently, in list form:

1 - Remember how we closed on our house two days before Caden was born? And then things got a little crazy when Caden joined our family? Well, because of all that, we havent really had a chance to settle into our house necessarily. And I know y'all are just dying to see pictures. But if I posted pictures right now, you would basically just see a large pile of crap. Piled on top of other crap. And you might be worried that we have turned into hoarders. Don't worry, however, because I will eventually show you what our house looks like. Without all the crap, hopefully.

2 - I realized a few days ago, that we currently spend 2/3 of our lives feeding Caden. Whether it's pumping, giving him a bottle, preparing a bottle, cleaning my pump parts, starting the feeding pump, cleaning the feeding pump, preparing fortified breast milk, and so on and so forth. And let me just say, it's a really good thing people are still making us meals because I don't think we'd have the energy left to feed ourselves.

3 - Speaking of Caden and eating, he hasn't been doing much better with the bottle than he was last time we checked in. And the cardiologist increased the amount we have to give him at each feeding, thus further reducing the likelihood that he will be able to take the entire bottle at each feeding. And we don't go back to the cardiologist for 6 weeks, so I'm a little fearful that he will be on that feeding tube until then. Which makes me feel both hopeless and not certain how we can physically keep our schedule up for that length of time.

4 - Basically we are stuck at home because of the aforementioned feeding schedule. So we're both a little stir-crazy at this point. Luckily, one of my friends lent me The Hunger Games, which I adore. Unfortunately, I read the first book in one day, which doesn't bode well for the amount of time I will be entertained by the series. If you haven't read it, I highly recommend. Highly.

5- Little man is finally allowed a little "tummy time." He has to be inclined while doing it until his sternum is completely healed (which takes 6-8 weeks), but it's exciting to do some "normal" baby things with Caden. Oh and if you haven't noticed, Caden has what we like to call an "expressive forehead." Those wrinkles just kill me.


  1. love that little guy! love your house and love y'all! praying that God supernaturally gives you time,energy, and in home entertainment;)!

  2. Love the way that he uses his forehead to keep his eyes open. Cutest baby EVER!!! One day you will look back and your "babies" will be turning into teenagers and entering puberty and .... well.. I just won't go there today :)

    Praying that you can take a breath and a nap and stand in the sunshine for a minute or two...

    Oh- we still don't show pictures of our house... we still have piles of crap and really no excuse at all...

    Let us know what we can do. When the meals end. Let us know and we will send a gift card for take out!

  3. Caden is so cute I can hardly take it. He makes me smile.

  4. He is so adorable.
    I am sorry about the feeding schedule. I will pray that the cardiologist can think of a solution!

  5. Hi! It doesn't get much cuter than little baby forehead wrinkles! :)

    Ethan had a feeding tube (G-tube) until he was 21 months old. While I know it's a little different than the NG, the schedules and the like are still the same. The around the clock feeding is maddening, but I pray that God would supply you with an endless source of energy and tolerance for this "new normal".

    Also, do you have a carrying case for Caden's feeding pump? That made it super easy to feed him on-the-go! There were many times I would warm up his bottle in the Target snack area, then run the pump through the store. We got some funny looks, but it kept Mama from going crazy, ya know? :)

    If you don't have a case, I would love to send you ours! Even if it's just for 6 more weeks, I think it will make a world of difference in the sanity department.

    Feel free to e-mail me at joyemullis(at)gmail(dot)com if you want it!

    Oh! And one other thing ... we did tummy time on the Boppy a lot. Ethan's OT suggested it, and I think it helped to relieve some pressure from laying flat on his sternum.

    OK .. now I'm done :)

  6. I Love those wrinkles too. So stinking cute!!!

    Yes, the feedings can get a little maddening. We did tube feedings for the first two years of Logan's life. 18 months of that were through a g-tube after struggling with the ng and bottle feeds for months. Some kids can never fully get a whole bottle feeding. It's just too much work for their precious hearts and their required intake can be a little much for them to take on their own as well. It'll be ok. I promise. You eventually get used to the demanding feeding schedule and you learn to schedule your life around it. My suggestion to you is that as soon as you can get him on to a sippy cup the better it will be for all of you. We put Logan on the Nuk ones with the squeeze spout. That helped to cut down some of our feeding pump times becuase all he had to do was bite the spout ad milk would come out. It no longer required him to work at it to get the formula out.

    I would def give Joye a shout and borrow her carry case for the feeding pump. That way if you need to get out you will have everything you need. Less stressful on all of you.

    Keep your chin up. Like I said, it will get better, you will get it all figured out and before long it will all seem like second nature. {{{HUG}}}

  7. Continuing to pray for you daily! Aaron says hello to his heart buddy, Caden. Praying for him to have energy when eating and less and less time on the feeding tube. Don't know how you are doing it with pumping, feeding by bottle and feeding tube. You are amazing! We finally had to switch to formula last Friday because I was pumping less and less and Aaron wasn't getting enough. But since the switch, he is gaining like crazy! So excited to see him doing "normal baby" things like you said. He still hates tummy time. Working on that. Know that Stephen and I are praying for your family.

  8. Oh, sweet Becca! I feel so awful that I didn't even know about Caden! I just read through all of your blog posts since he was born, and I'm happy and sad and scared and rejoicing with you!! Praying for your beautiful family!

  9. Oh, I love his little expressive forehead. :) Still lifting you guys up in prayer. Please let us know if/how we can help!

  10. Hey, I do not know what is preventing Caden from taking his bottle completely, but is it that suck, swallow and breathe coordination thing? Have you guys tried the bionic bottle? It worked wonders on our little guy. We were provided that by the speech therapy people at Childrens.


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