Monday, August 15, 2011

Praise Report

I first and foremost wanted to give everyone a quick status report on Caden. We are thankful to say that they were able to take Caden's chest tubes out this morning. Some air got into his chest cavity when they took the tubes out, so they weren't able to take him off the ventilator until late this afternoon. Poor little man did NOT like having that tube down his throat, especially because they had to wean him off some of his sedatives and pain medications in order to get him extubated (take the breathing tube out). It was terrible just watching his little face get all red and his forehead wrinkle up while he tried to cry but no sound came out . . . My arms literally ached to hold him and rock him and make everything all better.

Thankfully they were able to get him off the ventilator. The nurse said the first 24 hours are important to see if he can do well without the ventilator, or if they have to put it back on. We are praying that he will be just fine without it! They also weaned him completely off the major pain medication he was on and turned off his blood pressure medication to see how his heart could handle that on it's own. . . Unfortunately, when we left this afternoon to go get Jayci, his LA (left atrium) pressure was really high (this is an indication of the work being done by that thickened left ventricle, which will determine whether or not he needs another surgery). We wont know whether or not that surgery will be necessary for another few months, but we are praying that number goes down significantly and the Lord will completely heal his heart.

The next few days are a process of seeing how he does without his ventilator and weaning him off some more medications. He still has his heart lines in, and we cannot hold him or go to the step-down unit until those are out.

Quite honestly, I'm flat-exhausted. And I'm pretty sure it's more emotional than physical. But right now I feel like I'm the least "ok" I've been throughout this whole process. So please be praying for Caden's continued healing, but also for peace and comfort for our hearts.

That said, we are oh-so-grateful and excited to see our little man without tubes down his throat and tape all over his face . . .
Thank you again for all your encouragement and support, I'm not sure words can ever describe how much it means to our family. We love y'all!

22 comments:

  1. Thank you so much for posting an update on your precious Caden - sending prayers and hugs your way. He is such a beautiful baby boy and so lucky to have such a wonderful family.

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  2. Beautiful baby boy! So many prayers headed your way!

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  3. Emotional stress is very exhausting...please remember to take care of yourself! I will absolutely be praying that God will surround you with His comfort and peace, that when you rest it will be sound and refreshing, that He will continue to carry you and your family throughout this time, and will continue to pray for full healing for your precious little Caden. I just have to say, he has the most adorable eyes...so, so beautiful. <3

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  4. oh becca ... this is such a good post in the way of precious Caden!! i will continue to pray for healing and for continued breathing on his own. many prayers for you, as well. you have stayed so strong, and that emotional stress takes so much out of you. many hugs.

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  5. So thankful for this good news.
    Dropping to my knees to continue to pray.

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  6. Wonderful to see him taking such strides. So many prayers and praises being lifted.!

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  7. oh he is so precious!! praying for him and for ya'll!!

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  8. Continued prayers for whole and healed hearts. Love to you guys!

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  9. SO glad to hear everything went well today! I was worried when you didn't post yesterday! Praying for Cadens continued strength and yours as well.

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  10. What a sweet face! So good to see it without all the tubes. He is such a precious little boy. What a blessing! We were in NICU with our third son, and every tube removal was a victory. Be strong, little guy, we are praying for you.

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  11. Those pictures of him are precious! Isn't every tube or wire that comes off so exciting!? Don't be discouraged when it seems like 2 steps forward, one step back. I think when they are fighters like Caden seems to be that they get worn out trying to get better and sometimes need help again. Avery went off oxygen once and then back on for a while and ultimately back off again - but I was so bummed when she went back on. But really, she was just working so hard on getting stronger that she actually needed to slow down a bit. It really seems like he is making huge strides in such a short amount of time! Praise the Lord!

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  12. Look at that beautiful face! Praying for the LA!!

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  13. Yay for a positive update! Lifting up prayers for your family.

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  14. Just wanted to let you know that Caden is adorable!

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  15. Praise and prayers for enduring strength and comfort. That wonderful little face brought tears to my eyes this morning.
    Kris Russell

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  16. Love those first two words - PRAISE REPORT! YES! That little sweet face with the rash from the tape... God love him... such a little fighter!

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  17. Thanks for posting an update. Caden has been in my thoughts and prayers since Becky Leatherman sent out the word. He is a beautiful boy and my prayer is that he makes a full recovery and lives a long and healthy life with his loving and wonderful family!

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  18. Praise God for the improvements already made. I will continue praying for complete healing for Caden. It must be heart wrenching to not be able to hold him, but thank God that face is clear now and ready for lots of kisses!

    Blessings to you all!
    Trudy

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  19. He is so precious.

    I shared the news with my husband that Caden's chest was closed because this is such a great move.

    Thinking of you...

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  20. What wonderful news! He is so cute and precious, I just want to pinch his little rosey cheeks! :) Praying for you!

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  21. Look at that sweet beautiful boy and his sweet mouth!! Praise the Lord for all his greatness and continued prayers sent your way!!

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  22. He's so beautiful! I'm overjoyed to hear the wonderful progress! Still sending lots of prayers your way!

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