Sunday, August 7, 2011

Caden's Surgery Tomorrow

Hi All,

  We met with Cadens surgeon today.  It was scary and intense.  He made sure we knew this was major heart surgery and that there are several things they will be doing that are all high risk.  I will try my best to explain everything well. 

The Plan:  Dr. Kanter explained they will be doing the Ross procedure and fix the coarctation (narrowing) as we expected.  He also said they will do a Konno procedure as well, because Cadens aortic valve is too narrow to fit his pulmonary valve they will put in its place.  To make it fit they will make an incision in the heart muscle so the valve fits well.   They did another echo this morning to ensure his left ventricle had the proper function to pump blood through his aorta, and indeed it is strong.  They are going to put in a pulmonary valve tomorrow as well.  They will use a piece of his paracardium sac (it surrounds the heart) to make a valve.  This is good because he will not need anitrejection meds.  Dr. Kanter said there is a small, very small, chance they can fix the coarctation and dilate the valve to open it up.  This would buy time to do a valve replacement when he is a few months older.

  We will get to hold him tomorrow morning before he goes to surgery.  They will take him back at about 7am to get all the lines in him and put on a ventilator.  They will probably make the first incision around 830 or 9am.  Once they open him up they will get him started on bypass, confirm the plan, and stop his heart.  From there we are told to expect surgery to be at least another 6hrs.  He will likely return to the CICU (CardiacICU) with his chest still open.  They will sew a plastic sheet, looks like plastic food wrap, to his chest to keep everything clean.  They will leave his chest open because the trauma of the surgery will cause severe swelling that will put pressure on his heart.  If they leave it open they will come back in 2-3 days to close his chest, once the swelling has gone down.

The scary:  There is a 90% chance of survival...good, but not the odds you like when its life and death.  Dr. Kanter has done this surgery over 100 times, but only 4 time on newborns.  He tells us that Caden has a very special heart that requires a very major and delicate surgery.  They will need to avoid kinking the vessels that supply the heart muscles with blood, it they get kinked he will suffer a massive heart attack.  They also need to take care to avoid the tissue that send the electric pulse that causes the heart to pump.  If they hit that Caden will need a pacemaker.

  He will have several lines in him supplying him with sedatives and pain killers. He will have 2 chest tubes, an external pacemaker, a ventilator, and a catheter.  It is going to be completely overwhelming to see him in that condition.  He will not feel the pain and will never remember the any of his hospital visit.  We will. We have been encouraged to take pictures of him so he can show off his battle scar and have pictures to share the story.  Also, so he will understand why we get so concerned when he does what boys do.

We are feeling peace tonight, and i hope and pray we will continue tomorrow.  We will get updates every 1.5-2 hrs and we will be sure to pass them along.  We are glad the surgery is tomorrow as we feel we are living two lives, one at the hospital with out son, and one at home with our daughter.  We feel and appreciate your prayers.  We are numb to our emotions right now, but are often reduced to tears by the story of Gods ministry through our 5 day old son.  We pray we will be an adequate voice to share Cadens story of God's goodness.  Caden is a fighter, his heart is strong.  We had no idea the meaning of his name until we googled it last night...Caden - Spirit of Battle/Fighter.  He will live up to his name.  We love you all!

Adam

38 comments:

  1. sending out a link to the "Candles for Caden" FB page and this blog to my church. We love you and are praying for you, the surgeons, and Caden non-stop. Be strong in the Lord and in His mighty power!

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  2. I will be praying all day. God bless your family.

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  3. We will be praying tomorrow without ceasing! I was curious as to what his name meant as well and I am in tears, it's just so fitting and very powerful that God knew he would need a strong name like Caden. We love you guys and will be thinking of you tomorrow.

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  4. I am allie's sister and want to let you know that we are praying for you all and especially for Caden!

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  5. I found your blog through another blog requesting prayers for your family. Dropping in to let you know that we are praying for Caden in Hurst, Tx.

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  6. Lots of people in Nashville are lifting you guys up in prayer! Will be thinking of you guys all day tomorrow!

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  7. The Lord will fight for you.

    The Lord will fight for Caden.

    Praying for y'all.

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  8. Praying so hard for you guys and all day tomorrow during Caden's surgery. I got chills seeing what his name means. The Lord is with you all!

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  9. Will definitely be praying for your fighter tomorrow!!!! What an amazing name. Absolutely perfect.
    Psalm 23 comes to mind- fear no evil for He is with you. Praying for peace and the Lord's healing touch. Much much love to you.

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  10. Praying. Praying. Praying. Much love from Dallas, TX.

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  11. Sending our prayers from Houston. May God give you peace and comfort throughout the surgery as he watches over your precious baby boy.

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  12. We're praying with you all day tomorrow. I passed the blog onto our church too so they can join with you. Peace...

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  13. I found your story over at Monkeys On The Bed. I'm a mother of two little girls and can only imagine what you must be going through. Your family will be on our hearts and minds tomorrow here in Virginia. May God bless your surgeons with steady hands and clear minds, your family with peace and comfort, and your sweet little man with strength.

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  14. Praying so hard for ya'll and for sweet Caden...and will continue to do so all day tomorrow and in the days to come. In church this morning we sang David Crowder's "Everything Glorious" and all I could think about was ya'll...I can't imagine what ya'll are going through but I pray you'll be comforted by the One who works everything together for good.

    "You make everything glorious
    You make everything glorious
    You make everything glorious
    And (Caden is) Yours...."

    We love ya'll and you are never far from our thoughts! Praying!

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  15. HI, i found out about your son from a comment left on mckmamas blog. i immediately went to your blog and started praying. i saw that you said he was a choa and then i saw you are from atlanta. we live in covington outside of atlanta and my son spent 11 days at egleston when he was 4 days old. he had surgery on his intestines. He pulled through just fine but it was the worst time of our life. I know exactly how you feel. Your son is absolutely adorable and I pray that you will continue to have peace and give it to God! I will continue to follow you blog now as I have it saved in my favorites:) Prayers will be with you all tomorrow am. i love to remember the song
    Forever God is Faithful
    Forever God is Strong
    Forever God is with us
    Forever, Forever!!!!!!

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  17. The Apinis family just shared a prayer request for you all. I am praying, praying, praying for your sweet baby and family. Almost two years ago, my daughter had two open heart surgeries (one at 4 days, one at 3 months), both by Dr. Kanter.We found out about her multiple heart defects just 3 days before she was born. Dr. Kanter is wonderful. In our eyes, he is the best! We will be praying tonight and tomorrow that God will guide his hands and give you all peace as you wait.
    Love,
    The Gravitt Family

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  18. We are friends of katherine and Bryan through the Cicu in egleston. Our baby kaleb had to have open heart surgery from dr kanter when he was 4 days old. It is a very scary time but god will help you get through. Dr kanter and the staff are absolutely amazing. Out baby had a 50-60 percent chance of surviving his surgery and he pulled through at the time. Just know that we are all prayig for your little guy, and for your family to be strong and hold on through the rollercoaster ride ahead. Babies are very resilient and they are stronger than you or I realize. We were in your shoes almost exactly 2 years ago to date sittig next to katherine and Bryan for a month in the Cicu recovery. We pray for peace for your family and that god will bless dr kanters hands during the surgery.
    Tyler, april, Kaiden, Alena and our baby kaleb

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  19. Just saw your blog on a friend's Facebook page. I just want to let you know our little boy had major heart surgery two years ago when he was 2 months old. It was a very similar situation, undiagnosed at birth. His surgery lasted 6 hours and he has a "zipper" scar down his chest. He was also at Egleston and I believe Dr. kantor assisted on his surgery. Long story short, Brooks came through his surgery amazingly well and you would never know he ever had a "bad" heart. I will be praying all day for your sweet little Caden. He is in the best hands at Egleston! Stay strong!

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  20. you don't know me at all but a friend sent me a link to your blog. our little boy hollis was born with 3 heart defects (an asd, a vsd, and a partial av canal defect) as well as a congenital diaphragmatic hernia (cdh). he is 8 months old now and we have been home from the nicu in birmingham, alabama for about 2 months now. he is a complete miracle. we have a facebook page called hope for hollis which has chronicled our journey through 2 major surgeries as well as the general journey as a nicu parent. we have 4 other children and it was nothing short of an incredibly exhausting journey just putting one foot in front of the other somedays. we also have a caringbridge page here: http://www.caringbridge.org/visit/hollisyaun if you would like to look at either site. there are some pretty graphic pictures of him straight out of both surgeries. some people need things like that to prepare for their own little one going through something similar. for some, it makes things worse. for me, i felt more prepared to have an idea of what hollis would look like when we saw him. please know we're open books if you have any questions or if you just need to vent or scream to someone who has been there, done that. our thoughts and prayers are with all of you tomorrow and in the days to come! ryanandkelly@yaun.com peace.be.still.
    love from the yaun family (ryan, kelly, knox, mary frances, leo, flinn, and hollis):o)

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  21. I have come across this blog, and I know your thoughts very well. My son also had major heart surgery at 6 days old at Egleston. There is no better place for you to be. You will always want things and people to go faster, but know that they are amazing at what they do. Furthermore, I too am praying for your family, your son and your doctors. I promise you that God is using you and your child to touch many, and my prayer is for amazing works for you all.

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  22. I can not even imagine the mighty and awesome things that God has in store for your family. You have had so many faith- and strength-building trials in such a (relatively) short time. The life God has planned for you is and will be truly incredible. I am praying for strength, peace, wisdom, and healing.

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  23. Ashlee & ChesleyAugust 8, 2011 at 9:00 AM

    We are family of Courney's and have been praying like crazy for your family, the doctors and everyone involved! God Bless your family!!!

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  24. fasting and praying today, becca. i haven't stopped praying this morning, and i will continue on. i am praying for the surgeons, for sweet baby Caden and for you and Adam. may God rest his hands on all of you right now and over the next few hours.

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  25. Praying for you all day. Love you guys.

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  26. God, please be with Becca, Adam, Jayci and Caden today. You know Caden and already know his every need. Please hold him in your care and heal his tiny heart. Please draw his family close to you and give them the comfort, peace, hope and love that only you can give. Please give the surgeons and nurses that will care for Caden all the knowledge and skill that they will need to make important decisions today. God we ask for your love and guidance. We ask all of this in the name of Jesus. Amen
    Praying this prayer for your family today.
    The Russell Family, Bristow, VA

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  27. You are in the front of my mind and soul today.

    I remember all of those machines and of seeing our baby with her chest open and her newly repaired heart.

    I am praying hard for the wisdom of the surgeons and for strength of spirit for you.

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  28. praying safety/strength/healing for Caden, praying God intricately guides the docs' hands and gives them all His wisdom, praying especially that God blesses you all with a profound sense of His presence, comfort, sovereignty, and immense Love...

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  29. Found your story through a friend's post on facebook - praying for your sweet little boy and for your family this morning. May God's peace be with you and little Caden today and I'm praying for a successful and easy surgery and recovery. God bless you guys.

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  31. Your family inspires me. Your ability to completly trust, and depend on God in such an intense and heart heavy time leaves me speechless. I am in awe of your faith, and in awe of how God is touching so many lives, and bringing together so many people thru your family, and Caden. You both discovering the meaning of his name is just more proof that God has his comforting hands around Caden, and your family. I am praying for all of you constantly.

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  32. It will be scary and it will be hard, but you will make it through and it will be worth it. My heart aches for you today.
    I'm trying to think if something funny to give your heart a break for a minute. I know thats what i needed when we did it. Last week I painted my husbands nails in his sleep and then I wrote creepy messages on his bananas, they said "they know" and "you will be contacted soon". Was pretty fun, especially since he thought they came that way from the store.

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  33. Praying for Caden & ALL of the hospital staff. Thank you for the continued updates.

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  34. We are praying for you. I was in your same shoes 7 years ago with my own Caden. Dr. Kanter was our surgeon too and you are in the best medical hands with him.

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  35. Praying for you all. Caden is such a beautiful baby boy, and he is so blessed to have you as his family, covering him in your faith. God is so proud to call you his children and loves you more than anything! Thanks for being such an amazing example of living out your faith!

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  36. Like many others have said, you do not know me or my family but because of FB, your story has been told over and over. Prayer warriors are rallying for you and your family right now. I hope you feel their arms around you. As I was exercising this morning, my playlist went to the song by Mark Schultz called Come Alive. If you haven't listened to it, you need to. I stopped my exercise and just got on my knees to pray for HIs hands today not only for Caden, but for the rest of the family and surgical team. Please keep us posted as we will continue to pray for Caden. God Bless you and bring you strenght.

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